Crash

Micah and Courtney came up with a fun new game to play, good thing Micah is such a crazy boy to want to run full steam into things. It's good for a fun time and some laughs though.

A trip to the park

We went to the park a few weeks ago, the kids had fun running.g around. Then we went over on the nature walk and a bridge over a pond. The kids wanted to look over the side to see the water so we lifted them to look over the rail. Micah was excited to see over and let the passie fall out of his mouth. Here is his reaction, the passie in the pond and the kids posing on a log.

Hospital stay

So Wednesday the 11th started out kind of rough. Chelsea has been having seizures now for about 5 months, mostly have been regulated by medicine, but the last 3 weeks have increased the amount we see happening in a day (usually 2 or three). So Weds. started out getting ready for the day and Chelsea had 5 seizures within half an hour. So I took Micah to the day care and took Chelsea to the ER. On the trip to the hospital a couple more. The pediatric neurologist that we had been working with before was on a leave and there was a Dr. from California. He didn't like what he heard for the frequency and made room in his schedule. After a visit with him and another seizure he wanted a EEG to see what was going on. The EEG tech showed that there was all kinds of activity going on that wasn't normal, in fact within 20 minutes they went and had the Dr come up to see for himself. After that he admitted her to the hospital and started a new medication. Weds in the afternoon everything seemed to be going okay, they kept the EEG on her, which showed there were seizures still happening even when there was no outward signs. That night she had about 40 through the night. They decided that the new med must not be working and told us of another. I researched the drug and didn't like it. The drug was FDA approved 2 yrs ago, and only for over 17 yrs old. The side effect that stood out is that it can damage developing brain cells. 3 different doctors came in to talk about this drug, and after a lot of discussion we decided that this was the best option to do. The medicine worked and halted the excess brain activity, she still had a couple seizures, but the neurologist was satisfied with improvements and sent us home. The new medication he will work her off of after a week he said. We pray that the medication will not show the side effects, and that the seizures will again be controlled by the original medicine. Here is a video of Chelsea with her EEG stuff on reading with Grandma. We went home Friday at noon & she has been doing great so far, we appreciate all the prayers!

Hyvee

The Kids like going to Hyvee for 2 reasons, first, to get doughnuts, the second is to go for horsie rides. This usually helps in the maintaining of outbursts in the store. Here are the two kids after the last trip to HyVee.